E-Petitions.

This petition is now closed, as its deadline has passed.

We the undersigned petition the Prime Minister to make the treatment for Cockayne Syndrome available on the N.H.S. More details

Submitted by JAMES MULHOLLAND – Deadline to sign up by: 20 August 2008 – Signatures: 249

Petition update, 14 November 2008

You signed a petition asking the Prime Minister to "make the treatment for Cockayne Syndrome available on the N.H.S."

The Prime Minister's Office has responded to that petition and you can view it here:

http://www.number10.gov.uk/Page17451


Prime Minister's Office

More details from petition creator

make the treatment for Cockayne Syndrome available on the N.H.S one family has spent £28000 for their child to get treatment in the u.s.a this is morally wrong every British Subject has the right to free health care under 1946 health act,and more to the point the RIGHT TO LIVE more children are being diagnosed with this illness and life expectancy is 7 yrs.With treatment this increase greatly and quality of life improves dramaticley HELP THEM BEFORE ITS TOO LATE

Current signatories

JAMES MULHOLLAND, the Petition Creator, joined by:

  • James Pink
  • Julie Osborne
  • Karen Jones
  • Robin Knowles
  • Nathalie Mcsweeney
  • Pauline Wontner
  • Lisa Newton
  • Helen Buckenham
  • Elaine Bailey
  • Jayne Hughes
  • Mark Hughes
  • James Balch
  • Elaine Rawlins
  • Katie Sykes
  • Rhian Duffy
  • Liz Essex
  • Tim Parton
  • Roy Parton
  • Mike Appleby
  • David Balch
  • Simon Parton
  • Michael Brookes
  • Rachel Roberts
  • Richard Essex
  • Karen Elsmore
  • Pete Hicken
  • Jill Hollinshead
  • colin r sheady
  • Susan Reed
  • Louise Oades
  • Marie Hodgson
  • Brian Hepburn
  • Layla Kippax
  • Lydia Sibree-Paul
  • Stephen John Burgess
  • J Wyer
  • Sarah Ingram
  • Linda Grahamslaw
  • Sandra Carr
  • Laraine Davidson
  • Lana Wontner Finally
  • Kavan Graney
  • Dave Cumpstey
  • natalie simonds
  • Jill Lamb
  • Anthony Lamb
  • Jill Dawson
  • Michelle Greer
  • gareth john richards
  • Antony Stewart
  • Matthew Essex
  • Misti Brandon
  • Ed
  • Kev Davies
  • Aaron McDermid
  • C Horton
  • Anne Holmes
  • joseph sturdy
  • Jill Thurlow
  • Mike Clark
  • Alex Burrell
  • Tracy Turner
  • steve
  • ryan mchugh
  • Scott Woodrow
  • jenna walsh
  • george storey
  • Kathryn McVicar
  • Lynne Elsome
  • Lyndsay Bonnar
  • Raxona Khanum
  • Tony Cawley
  • lucy taylor
  • Ruth Jones
  • Edward Scrivens
  • Emma Blyth
  • ELIZABETH HARRIS
  • Cherith Howells
  • John Dawson
  • Francesca Reggimenti
  • Joanne Edwards
  • Pieter Botha
  • Clair Thompson
  • Nick Sadler
  • Neil Thompson
  • Margaret King
  • Penny Dear
  • stephen campbell
  • Beth Anslow
  • Chris Davies
  • Alison Watson
  • Simon Hobster
  • debbie wood
  • Colleen Lynch
  • Nigel Lowry
  • Wanda Georgiades
  • Judith Smith
  • Femke Oudsen
  • Barbara Morgan
  • Lucy Hoyland
  • Judith Cousin
  • Kathryn Berrisford
  • Angela Mills
  • Maggie Almey
  • Gary Regan
  • kelly tuplin
  • susan newson
  • Tina Hutchinson
  • Leroy Grant
  • Jayne Phillips
  • John Thickett
  • Paula Thomson
  • Liz Young
  • Hazel Bourton
  • Richard Laurie
  • Lorna Willis
  • Catherine Laurie
  • Barbara Day
  • John Day
  • Aaron Malins
  • tracey dawson
  • Evonne Murphy
  • Deborah Green
  • Patricia Brandon
  • Jackie McLeod
  • Giulio Santoro
  • Susan Marsh
  • Lorraine Hayes
  • Cheryl Williams
  • KEVIN HILL
  • VICKY VERMA
  • Jacqueline Riley
  • Jonathan Simmons
  • Alison Bennett
  • Catherine Davidson
  • william wyper
  • Louise Durkin
  • Laura Day
  • paul claridge
  • Khadine Swift
  • Katie Evans
  • julie caulfield
  • Natalie Brown
  • Jacqui Brown
  • Janet Hunt
  • Tony Day
  • Helen Wade
  • amy russell
  • Richard Murphy
  • Graham Shelmerdine
  • Neil Smith
  • Laura Murphy
  • Anneli Griffiths
  • Emma Murphy
  • Ellen Cater
  • Fortunata Oates
  • John Price
  • James Oates
  • Robert Tuppen
  • Denise Whitley
  • Jonathan Whitley
  • Diane Blain
  • J Taylor
  • S N E DEANE
  • Michael Finney
  • Doreen Smith
  • mary furlong
  • Sarah Doull
  • Guy Garton
  • David Graham
  • john dobson
  • Sara Murphy Valentine
  • Chris Pearson
  • Ann Pearson
  • alison pearson
  • Mark Pearson
  • Sarah Mee
  • Ian Hesselden
  • Nathan Maloney
  • Pauline Mee
  • Sophie Carran
  • Brian Mee
  • Maria Wilder
  • marcus wilder
  • Andy Peterson
  • Ian Holmes
  • Doreen May
  • JULIE KEELEY
  • paula jones
  • Barry Mee
  • chris Stephen
  • lynne mccaffrey
  • alan mccaffrey
  • Sudeshna Basu
  • Jacqueline Stephen
  • Sue Stephen
  • Ian Stephen
  • Sarah Stephen
  • David W.Metcalfe
  • Richard Metcalfe
  • Geoff Radcliffe
  • Scott Winn
  • colin alexander
  • kirsty dobson
  • Mr Partis (petitions.pm.gov.uk/NHS-dentists4all/)
  • Lindsey Cardy
  • ami knowles
  • steph hughes
  • deborah hughes
  • Patrick Brown
  • jack
  • kieran miles
  • arran moore
  • Morgan James Davies
  • want to
  • Samantha Clarkson
  • Ben Evans
  • Kayla mills
  • shaun hartley
  • Jennifer
  • Jennifer
  • Becca Don
  • charlotte bennett
  • sean hudson
  • Emma Hepburn
  • Joe Herman
  • lucy kendall
  • David John Roberts
  • Sylvia Pearson
  • Liam Halton
  • Polly Marchesi
  • shaun tomlinson
  • Brodie Simpson
  • Kyle Beattie
  • Russell Madden
  • Amy Johnson
  • helen hudson
  • Rachele Rossini
  • Rebecca Rossini
  • Annette Avedian
  • nicole
  • melanie dury
  • Laura Kennedy
  • Charles Andrews
  • Angela Shepherd
  • Bethan Morelli
  • amanda lee
  • Elaine Kinslow

Newsletter.

History and Tour.