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We the undersigned petition the Prime Minister to fund Exjade for sickle cell sufferers on chronic blood transfusion. More details
Submitted by Carol Nwosu of Sickle Cell & Young Stroke Survivors – Deadline to sign up by: 13 December 2007 – Signatures: 392
Petition update, 21 January 2008
You signed a petition asking the Prime Minister to "fund Exjade for sickle cell sufferers on chronic blood transfusion."The Prime Minister's Office has responded to that petition and you can view it here:
http://www.pm.gov.uk/output/Page14327.asp
Prime Minister's Office
More details from petition creator
Exjade has been trialled by children as young as 5 in the UK. The drug has been sucessful in removing excess iron from their bodies, now there is bickering amongst PCT's as to who should foot the bill for the children to stay on the drug. Leaving many others who were not part of the trial without a hope.
Current signatories
Carol Nwosu, the Petition Creator, joined by:
- Brian Parkin
- Franklin
- Adeyinka Rebecca Ariyo
- Angie Ebejer
- Ijeoma Uche-Okeke
- Stanley Commodore
- cecile powell white
- Byron White
- Lesley Rentz
- Toyin.O
- Yvonne Urhobo
- folakemi olafisoye
- Valentine Balogun
- boma ozobia
- Miss Val Barrett
- Nduka Agada
- Dan Ejelonu
- Ann lloyd-Nwosu
- Abdirahman Ahmed
- Dr Simon Dyson
- Anna Giokas
- Rachel Ritter
- Michelle Agyakwa
- A Akpo-Teye
- Anndeloris Chacon
- Rebecca Asamoah
- Renata Gajdosova
- maureen gwam
- linda okoye
- funmi ogunjinmi
- nne ihuoma
- Akinmolayan Olu
- Abraham Janet
- Ranti Nwosu
- Jo Nzeribe
- Sonia Lindsay
- Lester Holloway
- Dee Marshall
- Melanie Dottin
- HELEANA QUARTEY
- Howard Murray
- Patrick Williams
- Tony Warner
- Richie Moran
- George Sullivan
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- Jit Joshi
- Pauline Douglas
- anamaria Garcia
- Diane Scott
- Jennifer Eleodore
- Catherine Rock
- Fiona Jolly
- Dehab Embaye
- Hugh Stultz
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- Augustina Akoto
- Ellie Rose
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